By supporting JimmyKare Krafts, we will be able to continue to provide excellent care, necessary accommodations, and adaptive equipment to ensure that Jimmy has the best quality of life possible as he lives with Duchenne Muscular Dystrophy (DMD).
Jimmy was diagnosed with Duchenne Muscular Dystrophy (DMD) when he was 3 years old. DMD is a disease that affects all voluntary muscles including the heart and breathing muscles. DMD gradually weakens the body’s muscular strength. Jimmy has extremely fragile bones and has suffered multiple fractures. Sadly, there is no cure for the disease.
The son of Larry & Linda Kolopajlo, Jimmy is 14 years old. Like other boys his age, Jimmy enjoys swimming, video games, taking walks, and watching movies. He will begin high school in the fall and be a member of the Northview High School Marching Band. Jimmy can often be found cheering for his 15 year old brother, Joey, at his soccer games and cross country and track meets.
Jimmy has always loved the outdoors and spent many days playing on the swing set and in the sandbox. He and Joey climbed trees and caught lightning bugs and ran through the sprinkler. Jimmy loved our annual trip to Grand Haven to run through the waves of Lake Michigan. He absolutely treasured his many summers at Camp Christopher for Family Camp. Riding his jeep and dressing up in costumes passed the time away. He was a proud Cub Scout and crossed over to Boy Scouts. Unfortunately, Jimmy is unable to participate in these activities any longer.
Jimmy is quickly losing function; he is not able to walk and depends on his power wheelchair for ambulation. He sleeps in a hospital bed and is unable to turn over on his own. He requires assistance with all of his activities of daily living. Jimmy will need many more assistive devices and accommodations as he grows and continues to lose function from this horrible disease.
Although Jimmy is facing a future much different than other boys, he remains incredibly resilient as he continues to weaken. He has a great sense of humor and makes people smile with his wit and charm. He is extremely inquisitive and seems to ask questions continuously. Some of the questions are impossible to answer.
Currently, Jimmy is doing well and recovered from spinal surgery earlier this year. He is looking forward to the start of high school and being a member of the marching band. He practices his snare drum daily! He absolutely loves gardening and not only ensures that the garden is well cared for, he loves to share his delicious fruit and veggies. Not a summer day goes by that Jimmy is not swimming in our backyard pool.
Thank you for your support. We appreciate your thoughts and prayers as Jimmy continues on his journey.