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By supporting JimmyKare Krafts, we will be able to continue to provide excellent care, necessary accommodations, and adaptive equipment to ensure that Jimmy has the best quality of life possible as he lives with Duchenne Muscular Dystrophy (DMD).
Jimmy was diagnosed with Duchenne Muscular Dystrophy (DMD) when he was 3 years old. DMD is a disease that affects all voluntary muscles including the heart and breathing muscles. DMD gradually weakens the body’s muscular strength. Jimmy has extremely fragile bones and has suffered multiple fractures. He has recently been diagnosed with Scoliosis and is facing a lengthy surgery and recovery in the very near future. Sadly, there is no cure for the disease.
The son of Larry & Linda Kolopajlo, Jimmy is 13 years old. Like other boys his age, Jimmy enjoys swimming, video games, taking walks, and watching movies. He plays percussion in the school band and loves to play the piano, snare drum and bells at home. He is the statistician for his school football team. Jimmy can often be found cheering for his 14 year old brother, Joey, at his soccer games and cross country and track meets.
Jimmy has always loved the outdoors and spent many days playing on the swing set and in the sandbox. He and Joey climbed trees and caught lightning bugs and swam for hours in our pool. Jimmy loved our annual trip to Grand Haven to run through the waves of Lake Michigan. He absolutely treasured his many summers at Camp Christopher for Family Camp. Riding his jeep and dressing up in costumes passed the time away. He was a proud Cub Scout and crossed over to Boy Scouts. Unfortunately, Jimmy is unable to participate in these activities any longer.
Jimmy is quickly losing function; he is not able to walk and depends on his power wheelchair for ambulation. He sleeps in a hospital bed and is unable to turn over on his own. He requires assistance with all of his activities of daily living. Jimmy will need many more assistive devices and accommodations as he grows and continues to lose function from this horrible disease.
Although Jimmy is facing a future much different than other boys, he remains incredibly resilient as he continues to weaken. He has a great sense of humor and makes people smile with his wit and charm. He is extremely inquisitive and seems to ask questions continuously. Some of the questions are impossible to answer.
Jimmy never ceases to amaze us! He completed his first 5K and was thrilled to finish before half of the participants. His current wheelchair goes 6 MPH. His hope is that his next chair can go even faster!!
Thank you for your support, hope, and prayers for Jimmy as he continues on his journey.